Today we met with the hospice nurse. She showed us how to care for Jane and gave us two hospice options. Option one is to stay at home and we take care of her. Option two is for her to stay at the hospice facility. The choice is up to the patient/family. Jane initially said that she wanted to go to the hospice center. It took a little bit of work to understand why, but what it came down to is that Jane did not want to be a burden us with having to take care of her. The hospice nurse told Jane to take the “b” from burden and change to “b” in blessing. That brought a smile to her face and helped her to understand that we are here for her and that taking care of her during this time, no mater how hard it might be, is a blessing to us and an important way for us to express our love to her. I also told Jane, during this time, that it was our time to take care of her after all of the time that she had taken care of me and the boys.
The nurse covered how to clean Jane and work with the sheets on the bed. In the process Samuel voiced his concern about who is going to take care of Jane once school starts. We told him we would manage and that he didn’t have to worry about that part. Shortly after that, the nurse told me that, ” in all actuality Jane’s body is showing signs of declining and she probably does not have much longer. The nurse went through all the drugs that we had for Jane and helped us to work out a regiment that will ensure that Jane is as comfortable as possible. After we signed a bunch of paperwork, the nurse ask if we had any questions. I asked her what we can expect and how long we have with Jane. She told us that from all the signs, that Jane could have 3 days to 3 weeks. I plan on taking the time off to watch and care for Jane, and take care of the boys.
Please continue to lift our family up as we support and care for Jane. Pray for Jane as she continue to be confused, has a hard time communicating and get frustrated. Pray for Pastor Brian, who has been here to support and control visitors.
Thank you for pray for us.